ALTG 13/002 Health related quality of life in Malignant Mesothelioma – H Dhillon
This project is exploring longitudinal HQOL, anxiety and depression and supportive care needs in Mesothelioma. The relationships between HQOL and other prognostic factors such as inflammatory markers, malnutrition and functional status will also be investigated.
Participation will involve collecting routine medical information and completing a series of questionnaires at baseline and at regular follow up intervals for 2 years or until death. There will also be the option to participate in additional nutritional and functional assessments.
The project received ethical approval under the multi-site approval process in August 2013. Site-specific ethics approval has been received for 15 sites across NSW, QLD, VIC and SA. To date, 96 participants have been recruited with 28 currently active on the study. Thirty-four participants have died, 18 have withdrawn (primarily due to disease progression) and 16 participants have completed their 2-year involvement in the study. Recruitment rates at each site are listed below.
|Northern Cancer Institute||6|
|Prince of Wales Hospital||4|
|Royal Prince Alfred Hospital|
|The Prince Charles Hospital||17|
|Strathfield Private Hospital|
|Central West Cancer Service, Orange Health Service||6|
|Macarthur Cancer Therapy Centre, Campbelltown Hospital||2|
|Alan Coates Cancer Centre, Dubbo Base Hospital|
|Flinders Medical Centre||1|
|Chris O'Brien Lifehouse||15|
We are recruiting patients at any stage of their disease and their cancer journey. Once a participant has been consented our research team undertakes all ongoing management of their involvement in the study. The project received ALTG endorsement in March 2013 and is supported by a translational research grant from Cancer Institute NSW.
Investigators: A/Prof Janette Vardy, Dr Haryana Dhillon, Dr Steven Kao, Dr Melanie Price, Dr Cindy Tan and Ms Jocelyn McLean.
Study Coordinator: Mr Jason Fowler firstname.lastname@example.org