CAP members

The Consumer Advisory Panel (CAP)

ALTG recognises the importance of consumer involvement in the design of clinical trials that will improve outcomes for patients and has formed the ALTG CAP to provide a consumer perspective on issues related to clinical trials.

If you are interested in joining the ALTG CAP, please fill out an EOI and email to altg@lungfoundation.com.au

Members and roles

Anita McGrath – Consumer Representative

Anita McGrath is a Consumer Representative on a number of working groups in both not for profit organisations and Queensland Health. This includes Cancer Care Services and Hearth & Lung clinical stream working groups within Metro North Hospital Health Service (Qld Health). She also works with organisations such as Lung Foundation Australia and Rare Cancers Australia. Anita started consumer representative work after being diagnosed with NSCLC lung cancer in 2014. Prior to her cancer diagnosis she worked as an accountant in the travel industry.

Andrew Bowen – Consumer Representative

Andrew has been a long-standing member and consumer advocate for the ALTG, after feeling compelled to make a difference for lung cancer patients following his wife passing from lung cancer in 2007. Andrew is motivated to continue his consumer advocate work to ensure the patient and carer ‘voice’ is heard and research activities achieve a balance of both improved medical outcomes and outcomes that are important to patients.

Sue McCullough – Consumer Representative

Mrs Sue McCullough OAM is a 17-year survivor of lung cancer and has been an advocate for people with lung cancer for more than 15 years, specialising in cancer research for the last 10 years. A member of The Translational Cancer Research Network (TCRN) Consumer Advisory Panel, Trans Tasman Radiation Oncology Group (TROG) Clinical Research Education Workshop committee and Cancer Australia’s Lung Cancer Advisory Board, Sue is partnered with numerous researchers to provide the patient’s perspective, to strive for patient-centred trials and to ask the questions that people with lung cancer want asked.

Lillian Leigh – Consumer Representative

Patient research advocate Lillian Leigh is a mum and lawyer who uses the stories of her life living with lung cancer, and those she meets, to improve the outcomes of lung cancer. In 2018, Lillian was appointed by the Federal Minister for Health to Cancer Australia’s Advisory Council. She serves as a member on Cancer Australia’s Research and Data Advisory Group and the Priority-driven Collaborative Cancer Research Scheme’s (PdCCRS) Grants Review Committee. Lillian is a member of the Woolcock Institute’s Lung Cancer Research Network Advisory Board and Cancer Voices’ Executive Committee. She has also volunteered as a patient advocate for Lung Foundation Australia, Rare Cancers Australia, and Cancer Council NSW. Lillian was a recipient of the Patient Advocacy Award at the International Association for the Study of Lung Cancer (IASLC) 17th World Conference on Lung Cancer Conference (WCLC) in 2016 and was an invited inaugral mentor on the the IASLC STARS program at the 20th WCLC in 2019.