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ALTG 13/002 Health related quality of life (HQOL) in malignant mesothelioma

This project will explore longitudinal HQOL, anxiety and depression and supportive care needs in Mesothelioma. The relationships between HQOL and other prognostic factors such as inflammatory markers, malnutrition and functional status will also be explored.

Participation will involve collecting routine medical information and completing a series of questionnaires at baseline and at regular follow up intervals for up to 2 years or until death. There will also be the option to participate in additional nutritional and functional assessments.

The project received ethical approval under the multi-site approval process in August 2013. Site-specific ethics approval has been received for 15 sites across NSW, QLD, VIC and SA. To date, 54 participants have been recruited with 41 currently active on the study (10 participants have deceased, 3 have withdrawn). Recruitment rates at each site are listed below.

 

  • Concord Hospital (2)
  • ADRI (20)
  • Northern Cancer Institute (6)
  • Prince of Wales Hospital (1)
  • Royal Prince Alfred Hospital (0)
  • Westmead Hospital (3)
  • The Prince Charles Hospital (12)
  • Strathfield Private Hospital (0)
  • Central West Cancer Service, Orange Health Service (2)
  • Macarthur Cancer Therapy Centre, Campbelltown Hospital (0)
  • Liverpool Hospital (3)
  • Alan Coates Cancer Centre, Dubbo Base Hospital (0)
  • Flinders Medical Centre (0)
  • Chris O-Brien LifeHouse (5)

We are recruiting patients at any stage of their disease and their cancer journey. Once a participant has been consented our research team undertakes all ongoing management of their involvement in the study. Any investigators and sites interested in participating will be most welcome, with the opportunity to participate just in questionnaire completion or other optional aspects if resources allow. If you are interested, please contact Jason or Haryana. The project received ALTG endorsement in March 2013 and is supported by a translational research grant from Cancer Institute NSW.

Investigators: A/Prof Janette Vardy, Dr Haryana Dhillon, Dr Steven Kao, Dr Melanie Price, Dr Cindy Tan and Ms Jocelyn McLean

Study Coordinator: Mr Jason Fowler     jason.fowler@sydney.edu.au